Association of Gaucher's charity care patients in Jordan


Early detection of people with Gaucher disease. And help people with Gaucher disease, access to necessary medical care. And providing psychological and moral support to them. Humanity and the consolidation of relations and relations of cooperation andpartnership between the patients themselves, their families andtheir community and abroad. And the establishment of medical clinics, laboratories and medical centers to provide necessary medical care.Clinical diagnosis and laboratory tests, treatment and medical research for Gaucher patients and their relatives to members ofJordanian society who are in need of such medical care. And work to mitigate the complications resulting from this disease. Andsupporting the families of patients and advise them. Awareness and knowledge about the disease, Gaucher's and other diseases(rare diseases in particular) and the emphasis on the medical examination before AlzoaGaucher's disease and other genetic diseases) in the Jordanian society. In cooperation with institutions and associations related tothe Kingdom and abroad to expand the research and medical cooperation, exchange of experiences.


  • Establishment Date: 2004
  • Members: 30 Members
  • Branches: None
  • President: Mohammad Alantaki
  • Managing Board: Vice President: Simon Farah.

    Treasurer: Raghda Karadsheh.

    Secretary: Majed Al Fakhouri.
    Members: Amneh Fraihat, Mayson Abu jamos
  • Election Period: Three years
  • Last Election: 2009

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